Haisley Grace Herlong unknowingly was born with a congenital defect that occurs at seven weeks gestation called monodini malformation, which is abnormality of the cochlea.
Haisleys cochlea only has a 1-1.5 turn with an enlarged vestibule, where as a normal cochlear has a 2.5 turn. Due to Haisleys defect she was diagnosed with profound hearing loss and will need cochlear implants in order to gain access to sound and to develop spoken language.
We are holding this 5K running event to bring awareness to profound deafness. All monies raised will be to help with some medical expenses and a donation to other hearing foundations to help support profound hearing.