Event Description

NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services. Over 25 million Americans have been diagnosed with rare diseases, and less than 10% of these diseases have a treatment approved by the FDA. Our goal is to raise money to help fund research for rare diseases.