Event Description

Hi! We’re Working On Walking!

We are a nonprofit organization dedicated to raising funds and awareness for spinal muscular atrophy. We’re hosting our first-ever walk this year, but we are going to need your help.

Our Why

Our founder, Alyssa, was diagnosed with SMA type 1 when she was just five months old. At the time of her diagnosis, little was known about this disease, and she was given less than two years to live. This October, she is turning 30.

This virtual fundraiser is not only a celebration, but a movement to celebrate more 30th birthdays. By raising funds that will support research efforts for this disease, we want to create a future where SMA won’t have the upper hand. A future where no SMA diagnosis is grim. A future where turning 30 is guaranteed and not subjected to the ruthlessness of this disease.

Because SMA is a progressive illness, we are in a race against the clock. And, we are determined to win.

Help us celebrate more 30th birthdays! Here’s how.

With all the uncertainties that exist with COVID-19, we are still committed to helping fund spinal muscular atrophy research efforts in a safe and FUN way. SMA doesn’t take a break, and neither will we. That’s why we’re hosting a virtual walk that can happen anywhere around the world at a time that’s most convenient for YOU.

The Details

Walk it. Run it. Roll it. There are no rules for having fun and supporting a good cause around here. Here’s how it works:

1. Get your walk on during the month of October. Whether it’s 3 or 30 miles, we encourage you to do what’s most comfortable for you.
2. Log your miles and times on the results page— just for fun. :)
3. Help us spread the word. Use the hashtag #more30thbirthdays to share this event and your contribution. We want to brag about ya on social media.
   
4. Or post your content on our RunSignup page here!
5. Help us go international with this event! That’s the beauty of going virtual, yeah?

Signing Up

1. Register individually. Teams can be formed after the fact.
2. Collect donations for our organization if you wish— but it isn’t necessary!
3. Sign up before October 1st and receive a t-shirt by mail and be entered into our weekly raffle. Shirts will ship by mid-October and prizes will ship in November. 
4. Email us with questions or concerns at info@workingonwalking.org!

Sponsorships

Interested in sponsoring our event? Please fill out the form here.

Special thanks to Biogen for sponsoring this event.

Learn more

Head over to our website to learn more about SMA and our fundraising efforts over the years.