Event Description

August 22, 2020 is our first Malan Syndrome Awareness Day!

ALL proceeds from 5K Dash for Dominick will go towards the Grow Hope Campaign. 

Whether you want to run, walk, jog, cycle, skip or hop, we need YOU to help us make a difference for all individuals living with Malan Syndrome. 

Dominick was diagnosed with Malan Syndrome when he was 22 months old. Receiving a diagnosis was bittersweet, finally having an answer was a relief but receiving a diagnosis so rare was terrifying. Dominick was the first child in New Jersey to be diagnosed. Dominick is now 5 years old and will be entering Kindergarten in September. He is a happy, silly and fun loving little boy. Although Dominick has a long road ahead of him he continues to move mountains and crush all challenges that come his way.